Down Syndrome Association of the LowCountry - Charleston, SC

Please note: This is not intended to be an exhaustive list of all Down syndrome related sites on the Internet, and DSAL cannot be held responsible for the content of external websites. Most of these websites carry links to other sites, and while many of these other linked sites also provide reliable information, some of them may contain content that we do not recommend.


We are an affiliate of the National Down Syndrome Congress and the National Down Syndrome Society.

 

Family Connection of South Carolina Contact Family Connection-Charleston: Molly Jones, Area Coordinator 6296 Rivers Avenue, Suite 300 North Charleston, SC 29406 Phone:  (843) 740.5500 Fax:  (843) 747.7222 Email:  charlestoninfo@familyconnectionsc.org

Trident United Way Trident United Way works to solve the problems facing individuals and families in our Berkeley, Charleston and Dorchester Counties of South Carolina's Lowcountry.

Special Olympics of the Lowcountry The official site for the Special Olympics of the Lowcountry.

Special Olympics of South Carolina The official site for the Special Olympics of South Carolina.

A Case For Inclusion United Cerebal Palsey has issued "A Case for Inclusion" to spotlight how state Medicaid programs are serving people with developmental disabilities. The analysis includes rankings for all 50 states and the District of Columbia, as well as letter grades in key Medicaid service areas.

The Down Syndrome Educational Trust The Down Syndrome Educational Trust publishes and maintains the Down Syndrome Information Network website. The Trust is a UK charity dedicated to improving educational and social opportunities for children and adults with Down syndrome. Their website provides information about their original scientific research, publications, consultancy, training and advice services.

Down Syndrome Health Issues This site by US pediatrician Dr. Len Leshin provides information for parents and professionals about Down syndrome health issues. It also maintains a comprehensive list of links to websites and discussion lists relevant to issues connected with Down syndrome.

Down's Heart Group The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down syndrome and congenital heart defects. It also runs a mailing list specifically for those interested in the heart problems associated with Down syndrome.

Down Syndrome Medical Interest Group (DSMIG) - UK This site provides information for healthcare professionals on "best practice" medical care for people with Down syndrome in the UK and Ireland. It has been produced by the UK Down Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland.

Down Syndrome Association - UK The Down Syndrome Association for England and Wales is a UK charity that exists to support people with Down syndrome, their family and careers as well as providing information for those with a professional interest. They also aim to improve general understanding and awareness of the condition and to champion the rights of people with Down syndrome. Their website provides a useful range of information pages - click on their "Information" button.

International Mosaic Down Syndrome Association Mosaic Down syndrome is the rarest from of Down syndrome. The International Mosaic Down Syndrome Association aims to provide information and emotional support to family members caring for individuals with Mosaic Down syndrome. They are keen to hear from as many parents as possible from around the world - especially as many parents have little local support because of the rarity of Mosaic Down syndrome. Their website provides information and advice about Mosaic Down syndrome, and has an "Ask Medical Professionals" link if you have a specific question about Mosaic Down syndrome.

Down Syndrome Research Foundation Located in Vancouver, Canada, the Down Syndrome Research Foundation (DSRF) is dedicated to improving life for people with Down syndrome. This website provides information about the Foundation's research, education, facilities and services.

Canadian Down Syndrome Society The Canadian Down Syndrome Society (CDSS) is a national organization whose mission is to enhance the quality of life for all individuals who have Down syndrome through advocacy, education and providing information. This site provides information and assistance to all those with an interest in Down syndrome.

National Down Syndrome Society - USA Through education, research and advocacy, the National Down Syndrome Society (NDSS) in the USA works to ensure that all people with Down syndrome have the opportunity to achieve their fullest potential. This site provides a comprehensive web resource on Down syndrome.

Down Syndrome New South Wales - Australia The aim of the Down Syndrome NSW is to encourage people with Down syndrome to fulfil their potential for successful and happy lives, in a society that knows their abilities and is supportive of their needs. The work of the Association is to represent the interests and respond to the needs of people with Down syndrome in the major aspects of their lives; as members of the family, in their individual pursuits, and as members of the community. This website is one way of working towards these aims.

Rugged Bear Durable children's clothing in those hard-to-find sizes

Canvas On Demand: Doing good in the local community.

Riverbend Down Syndrome Parent Support Group - A comprehensive source on Down syndrome for parents and professionals.

Down Syndrome Association of the UK -

Family Resource Center - The Family Resource Center for Disabilities and Special Needs, Inc. is a not for profit organization located in Charleston, South Carolina, providing information services throughout the Lowcountry.   The Family Resource Center was organized to promote opportunities for learning, inclusion, and empowerment for individuals with disabilities and special needs, their families, and their communities through such means as education, advocacy, and outreach.  The Board of Directors composed of parents and professionals from the tri-county, will always contain, in majority, members who are parents or family members of individuals with disabilities.

Down Syndrome Centre, based in Dublin, Ireland

This website reports stories, issues, achievements and matters relating to Down syndrome from all corners of the world so that people can readily and easily find out about worldwide developments in the care, treatment, development of people with this intellectual disability.

Hands on Health South Carolina - great info on statewide resources for families with all types of special needs.

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Excellent New York Times video on prenatal testing for Down syndrome
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Girl with Down Syndrome Named Homecoming Queen
 ABC News link with Video of Homecoming Queen

What is Down Syndrome?

Down syndrome is a chromosome disorder which usually causes a delay in physical, intellectual and language development. The degree to which each individual is affected varies widely. The exact causes of Down syndrome are currently unknown, and although there are prenatal tests that can detect Down syndrome, there is at this time no method for prevention and no cure.