1. New Families & Getting Started
DSAL New Family Guide — Local information and next steps for families welcoming a child with Down syndrome.
GiGi's Playhouse Charleston — Free educational, therapeutic, and social programs, plus new-family orientations. Website
MUSC Down Syndrome Clinic — Specialized medical care and referrals.
Family Connection of South Carolina — Family navigation, education, and peer support. Website
Jack's Basket — Support and resources for families welcoming babies with Down syndrome. Website
2. Health, Wellness & Safety
Project Lifesaver — Voluntary tracking program for individuals at risk of wandering. Berkeley County · Charleston County. Dorchester County program in development.
Rio's Law — South Carolina's Autistic/Neurodivergent specialty license plate for eligible individuals. Learn more
UNC HomeGrown Caregiver Wellness Survey — Research opportunity shared by Michelle Kang of UNC's Community Health and Wellness Resource Team, inviting caregivers of children with intellectual and developmental disabilities, including Down syndrome, to participate. Email dsalowcountry@gmail.com for more information.
MUSC Patient & Family Advisory Councils — Opportunities for individuals with Down syndrome and caregivers to help improve healthcare. Contact DSAL for referral.
3. Education, Therapies & Development
Early Intervention & Therapy Services — Information on PT, OT, speech therapy, and local providers.
IEP & School Support — Educational advocacy, school transitions, and DSAL Learning Series resources.
MUSC Occupational Therapy Capstone Community Survey — Help DSAL identify family needs and future program priorities. Take the survey
4. Community Programs & Inclusion
DSAL Buddy Camp & Adaptive Swim — Inclusive recreational opportunities.
GiGi's Playhouse Charleston — Programs including GiGiFIT, tutoring, cooking, and music.
Special Olympics South Carolina — Inclusive sports and athletic opportunities. Website
Mount Pleasant Unified Programs — Inclusive recreation and community activities.
City of Charleston Therapeutic Recreation — Adaptive recreation and inclusive performing arts.
HEART Inclusive Arts — Creative and performance opportunities. Website
Adaptive Surf Project & Adaptive Expeditions — Outdoor and adaptive recreational experiences.
5. Financial Assistance & Family Support
DSAL Family Grants — Up to $1,000 toward qualifying needs, including therapies, adaptive equipment, and enrichment opportunities.
DSAL Emergency Funds — Assistance for eligible families experiencing unexpected financial hardship.
DSAL Family Connections — Moms' Retreat, dads' gatherings, family events, and peer support.
6. Advocacy, Independence & Adult Resources
DSAL Advocacy Committee — Help identify issues, monitor legislation, and advocate for our community.
National Down Syndrome Congress — National advocacy and educational resources. Website
DSAL Adult Transition Resource Guide — Employment, adult day programs, transportation, healthcare, benefits, and community participation.
Self-Advocacy & Independence — Resources for teens and adults to develop independence and participate in community decisions.
RESOURCE HUB
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What is DSAL?
The goal of the Down Syndrome Association of the Lowcountry (DSAL) is to support the over 200 families in the Lowcountry area who have a family member with Down Syndrome. We strive to provide social and educational opportunities for our members and our community.
See what we do!
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New Parents
Whether you are pregnant with a child who has Down Syndrome or have recently given birth to a child with DS, we want to celebrate this baby and welcome you into this family! You are not alone and we are here to help you navigate this new adventure.
Welcome!
