News and What's Happening

Sue Buckley Down Synrome Education International

Inclusion Conference at a Glance:
Saturday, 9/13 – Educator Sessions Sunday, 9/14 – Parent Sessions Tuesday, 9/16 – Researcher Sessions

The Down Syndrome Association of the Lowcountry and the College of Charleston are teaming up to bring Professor Sue Buckley, internationally renowned researcher and trainer, to Charleston. Gen Ed and Special Ed Teachers: this conference is for
YOU! We invite teams of general and special education teachers to register together for these interactive workshops. We ask that at least two teachers from a school attend, and that at least one team member from each school be a general education teacher.
We also welcome administrators!

SPACE IS LIMITED! REGISTER TODAY!

Saturday, September 13th – EDUCATOR sessions

8:30 - 11:30am – Elementary (K – 5th grade)
- Language and reading skills
- Memory training
- Foundations for numerical learning
- Preventing and dealing with behavioral challenges
- Success in inclusive classrooms

1:30 – 4:30 PM (Middle and High School)
- Universal design, modifications, academic success
- Speaking / reading / writing skills
- Mastering technology (phone/web)
- Social development - managing emotions,
age-appropriate behavior, and friendships

*Workshop participants each receive $100

*All schools that send at least one general and one special educator will receive the Inclusive Education Resource Package ( $150 value):
- Reading and Language Intervention Teacher’s Handbook - Inclusion in Practice DVD
- Visual Schedule for the Classroom

Parking is available at the George St. garage, located on St. Phillips St. between George and Wentworth.
Sessions will be held at the Stern Center Ballroom (4th floor) on the CofC campus The Stern Center is located at the corner of George St. and Coming St.

Register by emailing Michele Deneau:
deneauma@cofc.edu
Please send your name, school, district, grade/age group, session, and teammate
You must be registered to attend.

Sunday, September 14th – PARENT sessions

11:30 – 2:00 Elementary (K – 5th grade)

- Language and reading skills
- Memory training
- Foundations for numerical learning
- Preventing and dealing with behavioral challenges
- Success in inclusive classrooms

2:30 – 5:00 PM (Middle and High School)

- Self-determination (money, travel, independence)
- Speaking / reading / writing skills
- Mastering technology (phone/web)
- Social development - managing emotions,
age-appropriate behavior, friendships, sexuality
- Success in school

Parking is available at the George St. garage, located on St. Phillips St. between George and Wentworth.
Sessions will be held at the Education Center, 86 Wentworth on the CofC campus The Education Center is located at the corner of Wentworth and St. Phillips

In these interactive workshops, you will learn how to maximize educational opportunities for your child, improve social skills and personal independence, manage behavioral challenges, and understand new technological supports.

Register by emailing Michele Deneau:
deneauma@cofc.edu

**PLEASE encourage your child’s teacher and other school support members to attend the Educator Sessions.



Physically Oriented Programming Thanks to Fundraising Collaboration with Ecofitness

On May 3rd, DSAL partnered with Eco Fitness to hold the 2nd annual Ride for Kids. The event was a huge success and over $15,000 was raised! This money will help pay for upcoming athletic camps and programs, including our first ever Climbing Camp August 11 to 15th at James Island CP!

A huge thank you to our sponsors: Earthfare, Sweetgrass Cycles, The Bicycle Shoppe, Mike's Bikes, The Sprout, Lowcountry Plastic Surgery Center, Hauck Realty, Try Sports, Lowcountry Beauty and Wellness, Jenn Cady Photography, Vanity Salon, Southern Bling, Andrew Peterson. Also, we want to thank our volunteers from DSAL: Michelle Annibale, Grant Baker, James Bethea, Katie Beck, George Ramsey, Eddie Gregory, Hope Banks, Frankie Antonelli and Robert Smith. Our volunteers helped with the raffle, distributed water and fruit, biked and did an awesome job (working the crowd or cheering on our riders).

Of course, this fundraiser would not be possible without the support and real passion for special people from the staff and members of Eco Fitness. A special thank you to Grace Ayers, Laura Gauntlett, Kyle Radaker, Catherine Vaughn, Lois Newberry, and Daryl Payton! Julia Slattery and I always look forward to our planning meetings with the Eco team and recognize how fortunate this partnership is for our organization and the special needs community here in the Lowocountry.

The program in only its second full year has already raised over a quarter of a million dollars for cognitive research being conducted at institutions like Johns Hopkins, Stanford and UCSD, and it is growing. Interest and participation across the country is helping RDS re-state public support for research that has the potential to develop therapies that will assist memory and learning in persons with Ds, and perhaps offset the increased likelihood of Alzheimer’s disease.

For more information, see their website- http://www.researchds.org/

RDS runners has some teams for specific marathons, but people (like me) can elect to run a marathon--or half, in this case--and fundraise through crowdrise.com. I would like to invite anyone else in DSAL to do this with me for the Charleston whole or half! It's easy. See http://www.researchds.org/rds-runners/. You can make your own fundraising page and run (it would be fun to train together!) or contribute to mine: http://www.crowdrise.com/FoolsforJules/fundraiser/kathyrogers1.

Please feel free to email me at beresrogers@gmail.com with any questions, or if you'd like to run together!!

Best,
Kathy Rogers

Lotta Granholm-Bentley, Director for the Center on Aging

Dr. Bentley will be joining our DSAL meeting at 7 on Thursday January 9th:

Who am I? Lotta Granholm-Bentley, Director for the Center on Aging and MUSC Brain Bank.
The work in the lab is focused on both clinical and basic science studies regarding the aging process in individuals in Down syndrome. We recently got a grant from the Alzheimer’s Association to study biomarkers in the blood that can predict if someone will get Alzheimer or not.
This study is done in collaboration with Harvard, Johns Hopkins, and Banner Health in Arizona.
Four years ago, we started a human brain bank at MUSC to help individuals with different neurological conditions in South Carolina. I am the chair for a national organization of research centers working together in this effort specifically for Down syndrome.
I would like to meet with the group to discuss our Brain Donation program, as well as preventive studies going on that your family member may benefit from. I would also like to help disseminate information from my national connections regarding what can be done now, and in our community to prevent dementia in people with Down syndrome.
Finally, I am also interested in prevention therapies in mothers of children with Down syndrome, since there is an increased risk of Alzheimer especially after a certain age.
All these studies are ongoing and we can work together in this effort.
I am very excited to work with your group on different aspects. I do not need blood or other tissues at this point, simply would like to urge people to sign up for the brain donation program.

http://academicdepartments.musc.edu/catalyst/archives/2013/11-29Alzheimers.htm

DSAL Summer Water Fun!

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